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I am a new born screening mom.
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I have ALD and my son was diagnosed with cerebral ALD. He has a successful bone marrow transplant in 2019.
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I am an ALD sister and daughter.
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22 Year Old Male with AMN
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I am 60 years old,live in England, and was diagnosed in 2003 after 4 1/2 years of misdiagnosis. I was the first in my family and have 2 girls one of which is a carrier. I have lots of lower back pain, bladder problems and balance issues. I walk with a rollator and use FES, or use a scooter for longer walks. I also have Addisons which was diagnosed 4 years ago, and osteoporosis diagnosed 8 years ago. I am also dairy,soy and egg intolerant.