One of our goals for 2021 is to compile a comprehensive list of locations of patients, leukodystrophy centers, and physicians in the ALD community. It is essential that we understand where patients are being diagnosed and who is taking care of them to ensure that all ALD patients and families receive quality care. We want to gather patient and family perspectives to better understand resources that the ALD community needs. We are currently interviewing ALD newborn screening families and will expand to all patient populations in the upcoming months. You can help by sharing your story.