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Have a son that just tested positive on newborn screen. Live in Dallas.
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I am an ALD mother, sister
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N/A
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I am 46 male diagnosed with AMN since 2010.
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Helene is what you can call me though I don't really like becoming called like that.
Playing croquet is the hobby she will never quit performing. She is currently a databases administrator and she will not alter it anytime soon. For many years I've been living in Wisconsin. She is operating and sustaining a blog here: https://Livegamevavada.Webgarden.com/
Playing croquet is the hobby she will never quit performing. She is currently a databases administrator and she will not alter it anytime soon. For many years I've been living in Wisconsin. She is operating and sustaining a blog here: https://Livegamevavada.Webgarden.com/
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Adrenomyeloneuropathy, started about 3 years ago
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I am a new born screening mom.
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Newly diagnosed. Trying to learn it all.
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I’m a 28 year old nurse living in Chicago. My dad has AMN, my uncle passed from it, and my aunt is a carrier. I’m married and starting to look at family planning and I’m getting genetic testing this week. Unfortunately, my dad’s condition is worsening quite rapidly, too. Along with all of this, I have had to face the fact that I have to deal with this condition as well (and I already have some mild symptoms). I would love to get to know other women with this condition and be involved in research as well.
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