We are a 501(c)(3) non-profit organization focused on improving the quality of life for those living with adrenoleukodystrophy through advocacy, education, research, and support. We believe we can accomplish our mission by pursuing the following initiatives to:
ALD Connect was founded in January 2013 by a dedicated group of clinicians, scientists, patients, and patient advocates. The organization arose out of a collective recognition that only a collaborative network would allow clinical care to keep pace with the many exciting scientific advances in the study of ALD/AMN. The Myelin Project merged with ALD Connect in 2019.
ALD Connect is committed to the principles of open scientific communication, peer review, full and open disclosure of potential conflicts of interest, and democratic governance of its organization and activities.