At ALD Connect, we are driven by a powerful mission to improve health outcomes for patients with adrenoleukodystrophy. By empowering patients, raising awareness, and accelerating the translation of scientific advances into better clinical care, we aim to make a lasting impact. Our vision is bold: to revolutionize care, end suffering from ALD, and ultimately find a cure. To learn more about our mission and vision, and how we are working to achieve these goals, please visit our Mission & Vision page.
About ALD Connect
ALD Connect is a 501(c)(3) non-profit organization dedicated to improving the quality of life for individuals affected by adrenoleukodystrophy (ALD) through advocacy, education, research, and support. Founded in 2013 by a passionate group of clinicians, scientists, and patient advocates, our organization emerged from the collective realization that a collaborative network was essential to ensure clinical care kept pace with the rapid scientific advancements in ALD research. Over the past decade, as the landscape of ALD has evolved, we have grown and adapted to continue meeting the needs of our patient community.









