ALD Connect

About ALD Connect

ALD Connect is a 501(c)(3) non-profit organization dedicated to improving the quality of life for individuals affected by adrenoleukodystrophy (ALD) through advocacy, education, research, and support. Founded in 2013 by a passionate group of clinicians, scientists, and patient advocates, our organization emerged from the collective realization that a collaborative network was essential to ensure clinical care kept pace with the rapid scientific advancements in ALD research. Over the past decade, as the landscape of ALD has evolved, we have grown and adapted to continue meeting the needs of our patient community.

Mission & Vision

At ALD Connect, we are driven by a powerful mission to improve health outcomes for patients with adrenoleukodystrophy. By empowering patients, raising awareness, and accelerating the translation of scientific advances into better clinical care, we aim to make a lasting impact. Our vision is bold: to revolutionize care, end suffering from ALD, and ultimately find a cure. To learn more about our mission and vision, and how we are working to achieve these goals, please visit our Mission & Vision page.

Meet the Team

Staff & Board of Directors

Our Board of Directors and dedicated staff form the backbone of our organization, driving our mission and vision forward with expertise, passion, and a commitment to excellence. The Board of Directors provides strategic oversight and guidance, ensuring we stay true to our core values while navigating the challenges and opportunities in our field. Our staff led by our Executive Director, work collaboratively to execute our programs, support our community, and achieve our goals. Learn more about our leaders on our Leadership page.

Our Partners

Our nonprofit partners are essential allies in our mission, bringing invaluable expertise, resources, and a shared commitment to creating positive change. These partnerships are built on mutual respect and a common goal of making a meaningful impact in our community. By collaborating with organizations that align with our values, we are able to amplify our efforts, reach more people, and drive lasting solutions to the challenges we face. Together, we work hand in hand to empower individuals, strengthen communities, and build a brighter future for all. To learn more about other leukodystrophy organizations, visit the Our Partners page.

Donate to ALD Connect

Please consider supporting our organization. Every donation helps make a difference.