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health e-cigarette hqd электронные оптом
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электронная сигарета в новосинеглазове hqd оптом челябинск
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электронная сигарета в новосинеглазове hqd оптом челябинск
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My son Lucas was diagnosed through newborn screen in CA in 2017. He is asymptomatic. I also have ALD and am asymptomatic.
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HI I'm an AMN but I've had ALD my whole life. Despite my disability I've accomplish a lot and try to keep my spirits up and encourage others with this disease in coping with it. My ears always open always wanted to encourage my ALD family.
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I have a 2 year old son (born 6/12/18) who was diagnosed with ALD via newborn screening in MN. This was the first our family knew of this disease. My (at the time) 4-year-old nephew was also diagnosed with ALD as a result of my son’s newborn screening. Both boys are being monitored at the University of MN.
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Hi. Father of two ALD boys
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I have ALD and my son was diagnosed with cerebral ALD. He has a successful bone marrow transplant in 2019.
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I am 60 years old,live in England, and was diagnosed in 2003 after 4 1/2 years of misdiagnosis. I was the first in my family and have 2 girls one of which is a carrier. I have lots of lower back pain, bladder problems and balance issues. I walk with a rollator and use FES, or use a scooter for longer walks. I also have Addisons which was diagnosed 4 years ago, and osteoporosis diagnosed 8 years ago. I am also dairy,soy and egg intolerant.
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I am a 56 year old female living in Texas with X-ALD/AMN. My mother, two brothers & sister have/had the ABCD1 mutation. I have been symptomatic for 12 years. I was diagnosed at the UDN at Baylor in Houston, Texas.
Bio :
Symptomatic mom of 2 boys with ALD (a toddler and a grown son) and an adult child without it. A former paramedic, I work at home now to make sure the youngest has all of the modern medical, educational, and psychosocial opportunities available to him. When not playing and teaching...
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Mother of 2 sons with ALD and symptoms female. I thought I had an account already, but neither of my email addresses are being recognized