ALD Connect

Our mission is to improve health outcomes for patients with X-linked adrenoleukodystrophy (ALD) by empowering patients, raising awareness, and accelerating the translation of scientific advances into better clinical care.

Every patient deserves a healthy life, every clinician hopes for the tools necessary to keep their patients healthy, and every scientist dreams of discovering the medical breakthrough that will eliminate disease. ALD Connect was established to unite patients, clinicians, and scientists from around the world with a common goal: to improve the lives of ALD/AMN patients by providing an open framework to deliver scientific breakthroughs to the patients who need them.

To achieve our goal, ALD Connect functions as an academic research consortium, a contracted research organization, and a resource tool for the ALD/AMN community.

About Us

For Patients & Families

We know that an ALD diagnosis is overwhelming. We are here to help. Please feel free to email us for...

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For Clinicians & Scientists

The ultimate goal of all we do at ALD Connect is to improve the lives of our patients. Sharing scientific...

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Resources & Support

Learn more about our educational and support resources for those with ALD and their families.

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Get Involved

To be successful, we rely on our community to help us in our cause. Join our community today.

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Newborn Screening

ALD Connect continues to support expanding ALD newborn screening. Every baby should be screened for ALD.

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Not all research involves giving participants a pill or some sort of therapy. The medical community can learn just as much, if not more, about a disease by learning how...

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