ALD Community Calendar

Community Call: Cerebral ALD

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Wednesday, March 3rd, 2021 at 8 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. **Please note that this month's call will be held on a Wednesday instead of the usual Tuesday…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
Website:
https://aldconnect.org/

Reproductive Options for ALD Families

Please join us on Friday, March 5, 2021 at 5pm EST for a discussion about Reproductive Options for ALD families. Click here to register and receive the Zoom link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehlpvq27b8bf0df0 Panelists Dr. Sara Vaughn Fertility Specialist Spring Fertility Dr. Troy Lund Pediatric BMT Physician University of Minnesota Leukodystrophy Center Dr. Amber Salzman President & CEO…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
Website:
https://aldconnect.org/

2021 ALD Family Weekend

2021 ALD Family Weekend ALD Family Weekend will be held March 19-21, 2021. Due to continuing COVID-19 restrictions and safety protocols, we will again welcome you all to a special online version of Family Weekend. All ages are welcome to join us free for three days of family fun, informative sessions, real time sing-a-longs, dance…

Details

Start:
March 19
End:
March 21
Website:
https://www.aldfamilyweekend.com/

Organizer

The Painted Turtle
Email:
admissions@thepaintedturtle.org
Website:
https://www.aldfamilyweekend.com/

Knockout ALD: Run for ALD, Cure the Boys (5K/1 mile)

Knockout ALD organizes and hosts the Run for ALD, Cure the Boys 5K and a one-mile-walk event in Maryland Heights, Missouri, to raise money for the ALD Research Fund at the University of Minnesota. This year's event will be in person and virtual, on November 20, 2021. Email Julie at [email protected] with questions.

Details

Date:
November 20
Time:
9:00 am - 12:00 pm
Website:
www.knockoutald.com

Organizer

Knockout ALD
Email:
RunforALD@yahoo.com
Website:
https://knockoutald.com/

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected] Please include the name of the event, description, and contact information. Thank you!