ALD Community Calendar

Community Call: ALD Parent and Caregiver Support

Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, February 5th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. Please…

Details

Date:
February 5
Time:
2:00 pm - 3:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqfh42f27911

The Grey Zone Introductory Webinar

Join us for a webinar on February 12th at 4pm EST (UTC-5 Time) with Dr. Stephan Kemp and Dr. Troy Lund to introduce "The Grey Zone" (https://aldconnect.org/greyzone/), a research project funded by ALD Connect and aimed at understanding which genetic variants in the ABCD1 gene put patients at higher risk for ALD symptoms, particularly cerebral…

Details

Date:
February 12
Time:
4:00 pm - 5:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejlu5nh62f210bed

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected] Please include the name of the event, description, and contact information. Thank you!