Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by a genetic leukodystrophy. Established in 2004 as ALD Life, we are an internationally recognised centre of excellence for those affected by adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN).
Remember The Girls' mission is to raise awareness of the many issues facing female carriers of x-linked genetic disorders; to provide a forum for x-linked females to share their stories, ask questions, provide and receive emotional support, and develop friendships; to advocate for increased attention of the medical community to the physical and emotional issues of females who carry x-linked disorders; and to provide financial support to carriers of X-linked disorders for medical treatment and diagnosis, as well as those seeking to build families free of genetic disease through assisted reproductive technologies and adoption.
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