Patient and Family Support Program
ALD Connect is proud to be able to offer grants to ALD patients and families who need financial assistance. Our program is intended to help offset cost of living expenses, including mortgage/rent, car payments, and utility bills. Unfortunately, we are unable to help with expenses related to treatment.
Michael Benton Travel Scholarship Program
As part of our Patient and Family Support Program, we provide travel scholarships for adrenoleukodystrophy patients needing to travel for medical procedures, doctor visits, patient events, and scientific conferences. Travel scholarships are intended to help offset travel costs but not to cover all costs in full.
We have funded several grant applications.
Michael Benton's Story
Michael was diagnosed with adrenoleukodystrophy when he was 8 years old. His daily diet and taking Lorenzo’s Oil were the first changes in his early life. His beautiful smile, ambition, exceptional intelligence, kindness and civility served him well for many years, but those years were cut too short. These admirable qualities were sustained throughout all the ensuing challenges he would bravely face.
Mike graduated from Corpus Christi School ‘94, Loyola High School ‘98, and the University of Colorado ‘02. He was proud to be an Oriole for 5 years in the PPBA baseball program, and played football, volleyball and soccer at Loyola. Michael made lifelong friends throughout his school years who have always provided a huge support system for him. His academic accomplishments and successes during his brief business career were a great source of pride to him.
One of Mike’s greatest passions was world travel. Some of his most adventurous travels involved searching for a cure. These travels brought him not only gratification but also a continued challenge. Michael was dynamic and strong-willed, a formidable adversary, known for his tenacity and impeccable integrity. He was a good friend to all who knew and loved him.
Michael’s mother, Patti, served as the President and Board member of The Myelin Project for more than 20 years. Michael’s brother Greg was the Program Director. In July 2019, The Myelin Project joined forces with ALD Connect. Patti and Greg are now on the ALD Connect Board of Directors.
ALD Connect will use funds that are donated in Michael’s memory to support other patients and families by awarding travel scholarships. The scholarships will help enable patients and families to travel to appointments, conferences and meetings. This will be a meaningful way to honor Michael since travel was such a huge part of his life.