ALD Connect

Resources

We know that it is difficult to navigate all the information that is online. Whether you’re seeking expert medical advice, financial assistance, answers to common questions, or emotional support, we offer a range of resources designed to guide you through every aspect of navigating life with ALD. Explore the sections below or reach out to us with any questions. We’re here to help.

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EL-PFDD

Externally-Led Patient-Focused Drug Development

The goal of our EL-PFDD was to amplify patient perspectives to ensure that treatments align with the real unmet needs and experiences of those living with ALD.

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Financial Assistance

Learn more about our Patient and Family Support Program and Michael Benton Travel Scholarship Program.

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Frequently Asked Questions

Find answers to common questions about ALD, covering topics from diagnosis to daily living, helping you navigate the complexities of this rare disease.

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Mental Health

Explore resources focused on mental health and emotional well-being, including strategies for coping with the challenges of living with ALD.

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Peer Mentor Program

Connect with others who have personal experience with ALD through our Peer Mentor Program, offering support, guidance, and shared experiences from those who truly understand.

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Webinars

Stay informed with our educational webinars, featuring experts who discuss a variety of topics related to ALD.

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Other Resources

Many other organizations are devoted to assisting ALD patients and their families, each providing essential resources and support.

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Useful Links

Webinars
Webinars
Externally-Led Patient-Focused Drug Development (EL-PFDD)
Externally-Led Patient-Focused Drug Development (EL-PFDD)
Peer Mentor Program
Peer Mentor Program

Raise Awareness for ALD

Raising awareness for adrenoleukodystrophy is essential to driving progress in research, support, and advocacy for the ALD community. By sharing information and spreading the word, you help amplify the voices of those affected and bring attention to the urgent need for improved care and scientific advancements.

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