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I am a 56 year old female living in Texas with X-ALD/AMN. My mother, two brothers & sister have/had the ABCD1 mutation. I have been symptomatic for 12 years. I was diagnosed at the UDN at Baylor in Houston, Texas.
Bio :
Symptomatic mom of 2 boys with ALD (a toddler and a grown son) and an adult child without it. A former paramedic, I work at home now to make sure the youngest has all of the modern medical, educational, and psychosocial opportunities available to him. When not playing and teaching...
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Mother of 2 sons with ALD and symptoms female. I thought I had an account already, but neither of my email addresses are being recognized
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Hi, I'm a man with AMN in my late 30s. I'm always happy to connect with others in our community!
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I am a 60 y.o. women carrier with symptoms. I had a brother who died at age 42 from ALD
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