Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Monday, November 20th, 2023 at 5 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ek2hcfzp33c0668a **Please do not register for this call unless…
Join us for a webinar titled "From Natural History to Clinical Trials: A Family Guide to Engaging in Research". This webinar will be led by Dr. Camille Corre, with ALD patient and family panelists Jennifer Steichen and Emily Reimer and will take place on Monday, November 20th at 7pm EST (UTC-5 Time). Contact [email protected] with…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 22 de noviembre a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…
Please join us for a community call on Monday, November 27th at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ek2hcg0q95bfade7 **Please do not register for this call unless you…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, November 28th at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ek2hcg1151fc7562 **Please do not register for this call unless you are a…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, November 29th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ek2hcg1e18619269 **Please do not register…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Monday, December 18th, 2023 at 3 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. **Please note the change in time for this month's call** You can register for the call using…
Please join us for a community call on Monday, December 18th at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. **Please note the change in date for this month's call** You can register for the call using the…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 19 de diciembre a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, December 20th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. **Please note the change in date for this month's call** You can register…
Please join us for a topic-based Community Call focused on mental health. Each call will focus on a specific topic, and will be structured and facilitated by Jesse Torrey, LAC. This month, our topic is Navigating Uncomfortable Feelings: stress, anxiety, guilt, sadness, anger, loneliness, and more. We know many of you feel overwhelmed, especially during…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, December 26th at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. You can register for the call at the following link: https://events.r20.constantcontact.com/register/eventReg?oeidk=a07ek4n6w18a2457ff5&oseq=&c=&ch= **Please do not register for this call unless…
