ALD Community Calendar

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, April 24th at 7:30 PM EDT for Newborn Screening, Young Families, and…

Details

Date:
April 24
Time:
7:30 pm - 8:30 pm
Website:
https://lp.constantcontactpages.com/ev/reg/haknwkj

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, April 25th at 5 PM EDT for pre-, post-, and non-transplanted families. Please reach out…

Details

Date:
April 25
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/d822nug

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

llamada comunitaria en español

¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica…

Details

Date:
May 7
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/d6jv5bn

Organizers

Fundación Lautaro te Necesita
ALD Connect

ALD Family Weekend

The following event is hosted by ALD Family Weekend: Family Weekend will be held August 8-11, 2024 at the amazing Painted Turtle Camp in Lake Hughes, California. After two years…

Details

Start:
August 8 @ 8:00 am
End:
August 11 @ 5:00 pm
Website:
https://www.aldfamilyweekend.com/

Organizer

ALD Family Weeked
View Organizer Website

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected]. Please include the name of the event, description, and contact information. Thank you!

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