Please join us for a community call on Monday, February 27th at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register for the call using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejnhjle0091c388d **Please do not register for the call…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, February 28th at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejnhjlei2dfb1cbb **Please do not register for the call unless you are a…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, March 5th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. You…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Monday, March 20th, 2023 at 5 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejp6ohor71f94181 **Please do not register for this call unless you…
Please join us for a community call on Monday, March 27th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register for the meeting using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejp6ohnf22991621 **Please do not register for this call…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 28 de marzo a las 5pm EDT (hora UTC-4) / 18 hs de Argentina. Regístrese…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, March 28th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejp6ohnxc897d7ad **Please do not register for this call unless you are a patient…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, March 29th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please use this link to register for the call: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejp6ohoa8aa43aec **Please do…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, April 2nd at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. Please…
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