Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, December 20th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. **Please note the change in date for this month's call** You can register…
Please join us for a topic-based Community Call focused on mental health. Each call will focus on a specific topic, and will be structured and facilitated by Jesse Torrey, LAC. This month, our topic is Navigating Uncomfortable Feelings: stress, anxiety, guilt, sadness, anger, loneliness, and more. We know many of you feel overwhelmed, especially during…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, December 26th at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. You can register for the call at the following link: https://events.r20.constantcontact.com/register/eventReg?oeidk=a07ek4n6w18a2457ff5&oseq=&c=&ch= **Please do not register for this call unless…
Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US for…
Please join us for a topic-based Community Call focused on mental health. Each call will focus on a specific topic, and will be structured and facilitated by Jesse Torrey, LAC. This month, our topic is "Goals for the New Year". The call will be held on Thursday, January 18 at 7pm EST. You can register…
Please join us for a community call on Monday, January 22nd at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ek7chvtn912545b3 **Please do not register for this call unless you…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 23 de enero a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, January 23rd at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ek7chvxceadbffd5 **Please do not register for this call unless you…
Join us for a webinar titled "Adrenal Insufficiency Starter Pack: Basics for Newly Diagnosed ALD Families". This webinar will feature perspectives from Dr. Sejal Shah, an endocrinologist, and Sophia Rowland, a parent of a son with ALD diagnosed by newborn screening. The webinar will be moderated by ALD Connect Board Member, Kathleen O'Sullivan-Fortin. The webinar…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, January 25th at 5 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. **Please note the new time for this call**. You can register for the call using the following link:…
See https://ulf.org/events/ for more information.
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, January 31st at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ek7chvzp20493e70 **Please do not register…
