llamada comunitaria en español
¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 5 de junio a las 5 pm EDT (hora UTC-4) y…
¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 5 de junio a las 5 pm EDT (hora UTC-4) y…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, June 8th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted…
Please join us for our ALD Connect Bootcamp for Men with AMN on Saturday, June 12, 2021 from 11:00 AM-4:00 PM. The Bootcamp will consist of four webinars and an…
Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be…
Please join us for a community call facilitated by Ken Dieffenbach and Justin D’Agostino on Tuesday, June 22nd at 7 PM EDT for AMN men. Please reach out to [email protected]…
The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – click here. The program is here.
The United Leukodystrophy Foundation will be hosting their annual Family Conference on Friday and Saturday, June 25th and 26th. Register here.
Please join us for a community call on Monday, June 28th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected]…
Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, June 30th at 7:30 PM EDT (UTC-4 Time) for Newborn Screening,…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Wednesday, July 7th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted…
¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 10 de julio a las 5 pm EDT (hora UTC-4) y…
Please join us for a community call on Monday, July 26th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected]…