Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, June 1st, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted families. Please note the time of this call differs from several past calls. Please reach out to [email protected] if you have any questions. Please register…
¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 5 de junio a las 5 pm EDT (hora UTC-4) y será facilitada por Jean Cappello. Regístrese usando este enlace: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehzl14src20c03a9 **No se registre para esta llamada a menos que sea un paciente o un cuidador.…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, June 8th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ei3hfi8k34a32ad3 **NOTE: Please do not register for this…
Please join us for our ALD Connect Bootcamp for Men with AMN on Saturday, June 12, 2021 from 11:00 AM-4:00 PM. The Bootcamp will consist of four webinars and an Ask-the-Experts session. We are finalizing topics and presenters. Our current tentative schedule is: 11:00 AM Standards of Care, Dr. Florian Eichler 12:00 PM Cerebral ALD,…
Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US…
Please join us for a community call facilitated by Ken Dieffenbach and Justin D’Agostino on Tuesday, June 22nd at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ei48ykecf41e87b8 ***NOTE: Please do not register for this call unless you are a patient…
The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – click here. The program is here.
The United Leukodystrophy Foundation will be hosting their annual Family Conference on Friday and Saturday, June 25th and 26th. Register here.
Please join us for a community call on Monday, June 28th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ei5e8pyc900c6094 ***NOTE: Please do not register for this call unless you are a…
Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, June 30th at 7:30 PM EDT (UTC-4 Time) for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ei5e8qly02266e0b ***NOTE: Please…
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