ALD Community Calendar

Community Call: Symptomatic Women

Please join us for a community call on Monday, August 23rd at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eif34mkje1473144 **Please do not register for this event unless you are a patient…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, August 25th at 7:30 PM EDT (UTC-4 Time) for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eif35fmja15e380e **Please do…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

llamada comunitaria en español

¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 28 de agosto a las 5 pm EDT (hora UTC-4) y será facilitada por Jean Cappello. Regístrese usando este enlace: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eialwig1504f8620 **No se registre para esta llamada a menos que sea un paciente o un cuidador.…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: AMN Men

Please join us for a community call facilitated by Ken Dieffenbach and Justin D’Agostino on Tuesday, August 31st at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eif34mun0d39170e **Please do not register unless you are a patient or caregiver**

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: Cerebral ALD

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, September 7th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eifjjz0a90f251a5 **NOTE: Please do not register for…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

2021 Outrun ALD Virtual 5K

X out ALD will host the 2nd annual Outrun ALD 5k on September 18th, 2021.  The 2021 Outrun ALD 5K will be virtual event once again this year. Outrun ALD raises funds for ALD research at the University of Minnesota's Leukodystrophy Center. Email [email protected] with questions. Follow X out ALD on Facebook and Instagram or visit our…

Details

Date:
September 18

Organizer

X out ALD
Email:
xoutald@gmail.com
View Organizer Website

Community Call: Symptomatic Women

Please join us for a community call on Monday, September 27th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eik9rkz9ae87eb4b **Please do not register for this event unless you are a patient or…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: AMN Men

Please join us for a community call facilitated by Ken Dieffenbach and Justin D’Agostino on Tuesday, September 28th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eik9se36618d1380 **Please do not register for this event unless you are a patient or…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, and Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, September 29th at 7:30 PM EDT (UTC-4 Time) for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eik9sehef23eeb5d **Please do not…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: Cerebral ALD

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, October 7th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eikhfyi83ee01231 **Please do not register for this…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

llamada comunitaria en español

¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 16 de octubre a las 5 pm EDT (hora UTC-4) y será facilitada por Jean Cappello. Regístrese usando este enlace: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eik9t55g61b714d3 **No se registre para esta llamada a menos que sea un paciente o un cuidador.**…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: Symptomatic Women

Please join us for a community call on Monday, October 25th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eioovsche49aaea2   **Please do not register for this call unless you are a patient…

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected] Please include the name of the event, description, and contact information. Thank you!