ALD Community Calendar

llamada comunitaria en español

¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 17 de octubre a las 5pm EDT (Hora UTC-4)/ 18 hs de Argentina. Regístrese usando…

Details

Date:
October 17
Time:
5:00 pm - 6:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejdu1aydfe271a5a

Organizers

ALD Connect
Fundación Lautaro te Necesita

Community Call: Symptomatic Women

Please join us for a community call on Monday, October 24th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfpripp449c4121.    **Please do not register for this call unless you are…

Details

Date:
October 24
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfpripp449c4121

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: AMN Men

Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, October 25th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please register for the meeting using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfprirmf961ee1c.   **Please do not register for this call unless you…

Details

Date:
October 25
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfprirmf961ee1c

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, October 26th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfpris2bcdb0765.   **Please do not register for…

Details

Date:
October 26
Time:
7:30 pm - 8:30 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfpris2bcdb0765

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted) Community Call

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, October 27th, 2022 at 5 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfprisof7cb78d2   **Please do not register for this call unless you…

Details

Date:
October 27
Time:
5:00 pm - 6:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfprisof7cb78d2

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: ALD Parent and Caregiver Support

Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, November 6th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. Please…

Details

Date:
November 6
Time:
2:00 pm - 3:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfprit92a83a48d

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: Cerebral ALD

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, November 17th, 2022 at 5 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejh5h7w17059d9e2   **Please do not register for this call unless…

Details

Date:
November 17
Time:
5:00 pm - 6:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejh5h7w17059d9e2

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: Symptomatic Women

Please join us for a community call on Monday, November 28th at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejh5h7vm2ce5ecef   **Please do not register for this call unless you…

Details

Date:
November 28
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejh5h7vm2ce5ecef

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

llamada comunitaria en español

¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 29 de noviembre a las 4pm EST (hora UTC-5) / 18 hs de Argentina. Regístrese…

Details

Date:
November 29
Time:
4:00 pm - 5:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfu0ayq3eefb695

Organizers

Fundación Lautaro te Necesita
ALD Connect

Community Call: AMN Men

Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, November 29th at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejh5h7we883ddc5b   **Please do not register for this call unless you are a…

Details

Date:
November 29
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejh5h7we883ddc5b

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, November 30th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejh5h7wmbaa11fb4   **Please do not register…

Details

Date:
November 30
Time:
7:30 pm - 8:30 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejh5h7wmbaa11fb4

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

Community Call: ALD Parent and Caregiver Support

Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, December 4th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. You…

Details

Date:
December 4
Time:
2:00 pm - 3:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejh5h7xjb1fd4809

Organizer

ALD Connect
Phone:
(833) 525-3266
Email:
info@aldconnect.org
View Organizer Website

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected] Please include the name of the event, description, and contact information. Thank you!