Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US for…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Monday, August 21st, 2023 at 5 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register using this link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejxkyf6n1592d096. **Please do not register for this call unless you…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 22 de agosto a las 5pm EDT (hora UTC-4) / 18 hs de Argentina. Regístrese…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, August 22nd at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejxkyf7g8626f029 **Please do not register for this call unless you are a…
Please join us for a community call on Monday, August 28th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejxkyf81f18ac395. **Please do not register for this call unless you are…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, August 30th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please use the following link to register for the call: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejxkyf8q9177c34e. **Please…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Monday, September 18th, 2023 at 5 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register at the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejyzagwh0069d7ad. **Please do not register for this call unless…
Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US for…
Please join us for a topic-based Community Call focused on mental health. Each call will focus on a pre-posted topic, and will be structured and facilitated by Jesse Torrey, LAC. The first call will be held on Thursday, September 21st at 7pm EDT and will focus on self-validation. Please reach out to [email protected] if you…
Please join us for a community call on Monday, September 25th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejyzagy494450e7a. **Please do not register for this call unless you…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, September 26th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejyzagyo9dad3a9e. **Please do not register for this call unless…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, September 27th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejyzagz7dc3e6479. **Please do not register…
