ALD Community Calendar

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, February 28th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register for the call using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ek8ynrjqd3a08b10   **Please…

Join the United Leukodystrophy Foundation for an educational and discussion webinar focused on recognizing Caregiver Burnout and ways to take care of yourself - as you continue to take care of your loved one with leukodystrophy. Panelists: Marla Chapleau, mother to Aiden affected by MLC David Flores, father to Joshua affected by 4H Margaret Halter,…

Join us for a webinar titled "Adult Cerebral ALD". This webinar will feature Dr. Ali Fatemi and Dr. Troy Lund. It will be moderated by ALD Connect Board Member and AMN patient, Ben Lenail. The webinar will take place on Wednesday, March 6th at 7pm EST (UTC-5 Time). You can register for the webinar using…

Save the dates for ALD Alliance's annual standards of care meeting and ALD family breakfast and gathering: NEWBORN SCREENING ROUNDTABLE (NBS PROGRAMS ONLY): MARCH 20, 2024 STANDARDS OF CARE CONFERENCE: MARCH 21 & 22, 2024 ALD FAMILY BREAKFAST & GATHERING: MARCH 23, 2024 More information, including registration information, can be found on the ALD Alliance…

Please join us for a community call on Monday, March 25th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/jy4cukx.   *Please note this call is for…

Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, March 26th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/dxv83hs.   *Please note this call is for patients and…

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, March 27th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register for the call using the following link: https://lp.constantcontactpages.com/ev/reg/m3stxn3.   *Please note…

Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's topic is, "Anticipatory Grief". The call will be held on Thursday, March 28 at 7pm EDT. Please reach out to [email protected] if you have any questions. You can register using the following link: https://lp.constantcontactpages.com/ev/reg/ypshkc9.   *Please…

See https://ulf.org/events/list/ for more information.

¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 2 de abril a las 5pm EDT (hora UTC-4) / 18 hs de Argentina. Regístrese usando…

Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place for ALD patients and families to lead the way in brainstorming ideas and resources for the ALD community. This group operates on a drop-in basis,…

Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's topic is, "Taking Control Where We Can". The call will be held on Thursday, April 18 at 7pm EDT. Please reach out to [email protected] if you have any questions. Register for the call using the following…