ALD Community Calendar

Please join us for a 90-minute Community Call co-hosted by ALD Connect (US-based) and Alex TLC (UK-based) on Sunday, February 23rd at 10am Eastern Standard Time (UTC-5 Time)/ 3pm Greenwich…

Please join us for a community call on Monday, February 24th at 7 PM EST for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin and Julie Chu. Please reach out…

Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, February 25th at 7 PM EST for AMN men. *Please note this call is…

Please join us for a community call facilitated by Kathleen O'Sullivan-Fortin and Christie Higuera on Wednesday, February 26th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of…

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, February 27th at 5:00 PM EST for pre-, post-, and non-transplanted families. Please reach out…

Join the Courageous Parents Network to explore how completing healthcare advance directives for/with your child can support your family’s goals and wishes. We will discuss the importance of discussing and…

Join us for a webinar titled "Grief 101: Updates, Hard Truths, and Myths". Grief is a natural and important response to loss, change, or a profound emotional experience. It allows…

The following is a webinar description put together by the Courageous Parents Network: Join a panel of siblings to gain insights into the fears and worries that siblings carry, the…

The following is a webinar description from the Courageous Parents Network: This event will help families understand the numerous stages to be considered while developing a special needs master plan…