Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen OĀSullivan-Fortin on Wednesday, April 24th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Register using the following link: https://lp.constantcontactpages.com/ev/reg/haknwkj. *Please note this call is for…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, April 25th at 5 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Register using the following link: https://lp.constantcontactpages.com/ev/reg/d822nug. *Please note this call is for patients and caregivers only.
Ā”Ćnase a nosotros para una llamada comunitaria ALD en espaƱol! Esta convocatoria es un proyecto conjunto entre la FundaciĆ³n Lautaro te Necesita y ALD Connect y serĆ” facilitada por VerĆ³nica de Pablo y Jean Cappello. La convocatoria se realizarĆ” el 7 de mayo a las 5pm EDT (hora UTC-4) / 18 hs de Argentina. RegĆstrese…
See https://ulf.org/events/list/ for more information.
See https://ulf.org/events/list/ for more information.
See https://ulf.org/events/list/ for more information.
The following event is hosted by ALD Family Weekend: Family Weekend will be held August 8-11, 2024 at the amazing Painted Turtle Camp in Lake Hughes, California. After two years of Camp-At-Home, and two successful years of Camp-At-Camp. Family Weekend is back again!! As we continue to return to normal operations we will still be…
See https://ulf.org/events/list/ for more information.
See https://ulf.org/events/list/ for more information.
Alex TLC is excited to announce that their Community Weekend 2024 will be taking place from Friday 11th to Sunday 13th October at Park Regis Birmingham hotel! See https://alextlc.org/news/community-weekend-2024/ for additional details.
See https://ulf.org/events/list/ for more information.
See https://ulf.org/events/list/ for more information.
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