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After a long and sometimes misdirected search I was finally diagnosed in January 2022 with AMN. Since there are no experts in the area, I am in the process of educating myself about this disease. Currently living in Topeka, KS.
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22 Year Old Male with AMN
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Man with ALD -Houston TX
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I have ald and my daughter has ald
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My name: Gidget Quezada
My age: 24 years old
Country: France
City: Aulnay-Sous-Bois
Postal code: 93600
Street: 37 Rue Sadi Carnot
My age: 24 years old
Country: France
City: Aulnay-Sous-Bois
Postal code: 93600
Street: 37 Rue Sadi Carnot
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I have a 16 y/o son, diagnosed ALD, Addisons when he was 5. He’s doing great but I was curious to connect with other parents. We are in Columbus OH
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Ald mom, patient and advocate
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I'm a parent of an ALD son who was diagnosed by newborn screening. His mother was unaware she was a carrier and through testing there is no family history.