ALD Connect

News & Events

Stay up to date with the latest from ALD Connect, including news, press releases, informative blog posts, community events, and inspiring patient stories. Here, you’ll find everything you need to stay informed and engaged with the ALD community.

VIEW ALL Blog Events News Patient Stories Press Releases
Community Calendar
{"paged":"9","pagename":"news-events"}
2nd October 2018
Blog
Events

2018 Annual Meeting
2018 Annual Meeting   ALD Connect 2018 Annual Meeting & Patient Learning Academy Videos 2018 Patient Learning Academy Videos 2018 Annual Meeting Videos Day 1: ALD Connect Consortium Annual Meeting … Continued
9th February 2018
News

Recommended Uniform Screening Panel (RUSP)
ALD was added to the Recommended Uniform Screening Panel (RUSP), a federal list of all genetic diseases recommended for state newborn screening (NBS) programs, in February 2016. However, at this … Continued
9th February 2018
Blog
Events

ALD Connect SCOUT program
ALD Connect SCOUT program With the creation of the NBS SCOUT Initiative (Supportive Community Outreach & Understanding Together), ALD Connect will draw upon the experience of previously-diagnosed ALD families and … Continued

Raise Awareness for ALD

Raising awareness for adrenoleukodystrophy is essential to driving progress in research, support, and advocacy for the ALD community. By sharing information and spreading the word, you help amplify the voices of those affected and bring attention to the urgent need for improved care and scientific advancements.

Get InvolvedCommunity Calendar