ALD Landscape Project
At ALD Connect, we are unwavering in our commitment to understanding the global landscape of adrenoleukodystrophy—where individuals with ALD live, their experiences, and how we can best support them.
The more individuals with adrenoleukodystrophy we document, the more we demonstrate the need for new treatments—making ALD a priority for biotech companies, academic institutions, clinicians, researchers, government agencies, and donors—all of whom play a critical role in driving progress.
Our collective voice becomes louder in driving progress forward, because there is undeniable strength in numbers. By participating in this global census, you’re helping to build a unified community that is boldly advancing advocacy, clinical care, education, and research. Together, we are making an impact that will change lives.



