14th August 2020

Patient Stories

Running miles for ALD: Grafton father’s mission to fund research

[vc_row][vc_column][vc_column_text] Running miles for ALD: Grafton father’s mission to fund research [/vc_column_text][/vc_column][/vc_row][vc_row][vc_column][vc_video link=”https://youtu.be/5gNlYmo6WYQ”][/vc_column][/vc_row]

5th March 2020

Patient Stories

Family of boy who became sheriff for a day raising awareness of neurological condition

Family of boy who became sheriff for a day raising awareness of neurological condition As an honorary Lehigh County Sheriff 8-year-old Kaleb Holder’s energy was highlighted back in March 2016. … Continued

14th September 2018

Patient Stories

Tanay and his family find hope for ALD with Gene Therapy trial

Tanay and his family find hope for ALD with Gene Therapy trial Tanay Suri and his family traveled halfway around the world for a groundbreaking adrenoleukodystrophy (ALD) treatment at University … Continued

27th August 2017

Patient Stories

Parents’ vigilance gives son a fighting chance against Adrenoleukodystrophy

Parents’ vigilance gives son a fighting chance against Adrenoleukodystrophy 12-year-old Nicholas Purschke plans to run a triathlon this year, a feat that wouldn’t be possible if early screening hadn’t found … Continued

Raise Awareness for ALD

Raising awareness for adrenoleukodystrophy is essential to driving progress in research, support, and advocacy for the ALD community. By sharing information and spreading the word, you help amplify the voices of those affected and bring attention to the urgent need for improved care and scientific advancements.

News & Events

Running miles for ALD: Grafton father’s mission to fund research

Family of boy who became sheriff for a day raising awareness of neurological condition

Tanay and his family find hope for ALD with Gene Therapy trial

Parents’ vigilance gives son a fighting chance against Adrenoleukodystrophy

Raise Awareness for ALD

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