Webinars
ALD Connect offers a series of informative webinars covering a range of topics related to adrenoleukodystrophy, including the latest research developments, treatment options, and patient experiences.
ALD Connect offers a series of informative webinars covering a range of topics related to adrenoleukodystrophy, including the latest research developments, treatment options, and patient experiences.
Child life specialist Katie Weagle, MS, CCLS, spoke at ALD Connect’s 2019 Annual Meeting and Patient Learning Academy about “Supporting the ALD Family”.
In 2022, we invited psychologist MaryAnn McCarthy to our Annual Meeting and Patient Learning Academy, where she discussed, “ALD: The Bitter and the Sweet”.
We invited Bruce McClary, LCSW-C, CCM, Jesse Torrey, LAC, and Amber Salzman, PhD to discuss ALD-associated trauma at our 2023 Annual Meeting and Patient Learning Academy.
ALD Connect was proud to present a special webinar with Jesse Torrey, Anna Torrey, Kathleen O’Sullivan-Fortin, and Maggie Fortin in 2023. This is a great resource for families who have unaffected siblings.
Cynthia R. Haddad – CFP® Wealth Advisor, Co-Founder & Partner
Your generosity plays a vital role in driving research and offering vital resources to those impacted by adrenoleukodystrophy. Contributions to ALD Connect help propel scientific advancements, enhance patient care, and broaden our education and support programs.
