ALD Connect

News & Events

Stay up to date with the latest from ALD Connect, including news, press releases, informative blog posts, community events, and inspiring patient stories. Here, you’ll find everything you need to stay informed and engaged with the ALD community.

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Community Calendar
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23rd June 2022
Blog
Events

ALD Family Weekend 2022
The Painted Turtle invites you to experience the magic of camp! ALD Family Weekend is a unique experience that allows families affected by ALD to connect in a…
8th October 2021
Blog
Events

Introducing our new Peer Mentors
Introducing our new Peer Mentors We are excited to introduce two new Peer Mentors: Tim Mathwig and Brad Gillepsie My name is Tim Mathwig. I am 45 years old and … Continued
2nd May 2020
Blog
Events

ALD Family Weekend
[vc_row][vc_column][vc_column_text] ALD Family Weekend – Camp At Home Click here to learn more about ALD Family Weekend. [/vc_column_text][/vc_column][/vc_row]
23rd April 2020
Blog
Events

April 2020 Community Calls
April 2020 Community Calls Symptomatic Women: April 27th at 7:00 PM EST facilitated by Emma Hayes Register here AMN Men: April 28th at 5:00 PM EST facilitated by Tim Maguire and … Continued

Raise Awareness for ALD

Raising awareness for adrenoleukodystrophy is essential to driving progress in research, support, and advocacy for the ALD community. By sharing information and spreading the word, you help amplify the voices of those affected and bring attention to the urgent need for improved care and scientific advancements.

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