ALD Connect

News & Events

Stay up to date with the latest from ALD Connect, including news, press releases, informative blog posts, community events, and inspiring patient stories. Here, you’ll find everything you need to stay informed and engaged with the ALD community.

VIEW ALL Blog Events News Patient Stories Press Releases
Community Calendar
{"paged":"8","pagename":"news-events"}
30th July 2019
Blog
Events

August Community Call
August Community Call “Newborn Screening, Young Families, and Parents of Asymptomatic Children”– Thursday, August 15 2019 @7 PM EST -Facilitated by Suzanne Flynn, Tara Meady, and Kelly Strenges Click here … Continued
9th July 2019
Blog
Events

July Community Calls
July Community Calls Please join us for our  July Community Calls! “Symptomatic Women”– Wednesday, July 10th 2019 @7 PM EST -Facilitated by JoAnn Locy and Janis Sherwood Click here to … Continued
5th June 2019
News

Emory University Newborn Screening Study
Emory University Newborn Screening Study Emory University in Georgia is recruiting ALD patients of any age and gender to give a single blood sample to provide quality control for newborn screening … Continued
4th June 2019
Blog
Events

2019 Annual Meeting Registration
2019 Annual Meeting Registration Register now for our 2019 Annual Meeting & Patient Learning Academy. Registration will close on October 1st, 2019. Limited financial assistance is available for travel and other costs. … Continued

Raise Awareness for ALD

Raising awareness for adrenoleukodystrophy is essential to driving progress in research, support, and advocacy for the ALD community. By sharing information and spreading the word, you help amplify the voices of those affected and bring attention to the urgent need for improved care and scientific advancements.

Get InvolvedCommunity Calendar