ALD Connect

News & Events

Stay up to date with the latest from ALD Connect, including news, press releases, informative blog posts, community events, and inspiring patient stories. Here, you’ll find everything you need to stay informed and engaged with the ALD community.

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25th February 2025
Press Releases

Statement from the ALD Connect Board of Directors
To Our ALD Community At ALD Connect, we are committed to improving health outcomes for those affected by ALD by bringing together patients, families, clinicians, researchers, advocates, and industry partners. … Continued
10th February 2025
News

Newborn Screening for Adrenoleukodystrophy
A recent study from the University of Minnesota with a five-year follow-up of boys identified through newborn screening suggests that C26:0-LPC levels at screening may predict early disease onset in … Continued

Raise Awareness for ALD

Raising awareness for adrenoleukodystrophy is essential to driving progress in research, support, and advocacy for the ALD community. By sharing information and spreading the word, you help amplify the voices of those affected and bring attention to the urgent need for improved care and scientific advancements.

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