ALD Connect

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Stay up to date with the latest from ALD Connect, including news, press releases, informative blog posts, community events, and inspiring patient stories. Here, you’ll find everything you need to stay informed and engaged with the ALD community.

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9th February 2018
News

Recommended Uniform Screening Panel (RUSP)
ALD was added to the Recommended Uniform Screening Panel (RUSP), a federal list of all genetic diseases recommended for state newborn screening (NBS) programs, in February 2016. However, at this … Continued

Raise Awareness for ALD

Raising awareness for adrenoleukodystrophy is essential to driving progress in research, support, and advocacy for the ALD community. By sharing information and spreading the word, you help amplify the voices of those affected and bring attention to the urgent need for improved care and scientific advancements.

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