ALD Connect

News & Events

Stay up to date with the latest from ALD Connect, including news, press releases, informative blog posts, community events, and inspiring patient stories. Here, you’ll find everything you need to stay informed and engaged with the ALD community.

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Blog
Events

COVID-19

COVID-19 What is known about COVID-19? 1. COVID-19 is a virus that can cause a severe respiratory illness in some individuals. 2. High-risk groups include older patients and those with … Continued
Blog
Events

August Community Call

August Community Call “Newborn Screening, Young Families, and Parents of Asymptomatic Children”– Thursday, August 15 2019 @7 PM EST -Facilitated by Suzanne Flynn, Tara Meady, and Kelly Strenges Click here … Continued
Blog
Events

July Community Calls

July Community Calls Please join us for our  July Community Calls! “Symptomatic Women”– Wednesday, July 10th 2019 @7 PM EST -Facilitated by JoAnn Locy and Janis Sherwood Click here to … Continued
Blog
Events

2019 Annual Meeting Registration

2019 Annual Meeting Registration Register now for our 2019 Annual Meeting & Patient Learning Academy. Registration will close on October 1st, 2019. Limited financial assistance is available for travel and other costs. … Continued
Blog
Events

2018 Annual Meeting

2018 Annual Meeting   ALD Connect 2018 Annual Meeting & Patient Learning Academy Videos 2018 Patient Learning Academy Videos 2018 Annual Meeting Videos Day 1: ALD Connect Consortium Annual Meeting … Continued
Blog
Events

ALD Connect SCOUT program

ALD Connect SCOUT program With the creation of the NBS SCOUT Initiative (Supportive Community Outreach & Understanding Together), ALD Connect will draw upon the experience of previously-diagnosed ALD families and … Continued

Raise Awareness for ALD

Raising awareness for adrenoleukodystrophy is essential to driving progress in research, support, and advocacy for the ALD community. By sharing information and spreading the word, you help amplify the voices of those affected and bring attention to the urgent need for improved care and scientific advancements.