Please join us for a community call on Monday, September 26th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register with the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejdu1ax401cb6c7d. **Please do not register for this call unless you are…
Join us for a group session to debrief and process any thoughts and feelings that were elicited by ALD Connect's July EL-PFDD meeting. The session will be facilitated by Dr. Al Freedman, a licensed psychologist who specializes in rare disease. Spots are limited to ensure personalized discussion, so please register for only one session. Please…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, September 27th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejdu1axe2b0925a4. **Please do not register for this call unless you are a patient or…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, September 28th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following risk: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejdu1axm4956e050. **Please do not register for…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, September 29th, 2022 at 5 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eje2me6b3a6e56d2 **Please do not register for this call unless you…
Join us for a group session to debrief and process any thoughts and feelings that were elicited by ALD Connect's July EL-PFDD meeting. The session will be facilitated by Dr. Al Freedman, a licensed psychologist who specializes in rare disease. Spots are limited to ensure personalized discussion, so please register for only one session. Please…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, October 9th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. You…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica de Pablo y Jean Cappello. La convocatoria se realizará el 17 de octubre a las 5pm EDT (Hora UTC-4)/ 18 hs de Argentina. Regístrese usando…
Please join us for a community call on Monday, October 24th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfpripp449c4121. **Please do not register for this call unless you are…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, October 25th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please register for the meeting using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfprirmf961ee1c. **Please do not register for this call unless you…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, October 26th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfpris2bcdb0765. **Please do not register for…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, October 27th, 2022 at 5 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejfprisof7cb78d2 **Please do not register for this call unless you…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, November 6th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. Please…
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