ALD Community Calendar

Please join us for a community call on Monday, March 28th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej3eyv6p2bac001d   **Please do not register for this call unless you are a…

ALD Connect is hosting an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting with the FDA on July 22, 2022, targeting ALD in adulthood. We need members of the ALD community to be involved to make this meeting a success. Please join us for a community webinar on March 29th at 4pm EDT to learn how you…

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, March 30th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] with any questions. You can register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej3eyv6wf521dd45   **Please do not…

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, March 31st, 2022 at 5:30 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. You can register for the call using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej3eyv6z0dda7515   **Please do not register for…

Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, April 3rd at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to join. Please reach out to [email protected] with any questions. You…

Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved upon for patients and families with ALD? Are you curious how you might be able to advance a cure for ALD? A: JOIN US for…

Please join us for a community call on Monday, April 25th at 7 PM EDT for symptomatic women facilitated by Janis Sherwood. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej5h57jy7dcf98aa.    **Please do not register for this event unless you are a patient or caregiver**

Please join us for a community call facilitated by Ken Dieffenbach on Tuesday, April 26th at 7 PM EDT for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej5h57k63fc41c2a **Please do not register for this event unless you are a patient or caregiver**

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, April 27th at 7:30 PM EDT for Newborn Screening, Young Families, and Parents of Asymptomatic Children. This call will also feature a guest appearance from mental health professional, Johanna Bond, LMHC. Please reach out to [email protected]…

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, April 28th, 2022 at 5:30 PM EDT for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ej5h57kieac89806.  **Please do not register for this call unless you are…