The Courageous Parents Network is offering the following webinar. You can view more and register at the following link: https://courageousparentsnetwork.org/events/supporting-and-celebrating-the-siblings "From the time that their sibling is diagnosed with a…
Please join us for a community call on Monday, January 27th at 7 PM EST for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you…
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, January 28th at 7 PM EST for AMN men. You can register using the…
Please join us for a community call facilitated by Kathleen O'Sullivan-Fortin and Christie Higuera on Wednesday, January 29th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of…
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC and Emma Hayes. This month's call will be focused on "Do you want…
The following is a description of a webinar being hosted by the United Leukodystrophy Foundation: Join us for an insightful webinar, “Family Planning as a Carrier,” hosted by Julie Cohen,…
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica…
Please join us for a 90-minute Community Call co-hosted by ALD Connect (US-based) and Alex TLC (UK-based) on Sunday, February 23rd at 10am Eastern Standard Time (UTC-5 Time)/ 3pm Greenwich…
Join the Courageous Parents Network to explore how completing healthcare advance directives for/with your child can support your family’s goals and wishes. We will discuss the importance of discussing and…
Join us for a webinar titled "Grief 101: Updates, Hard Truths, and Myths". Grief is a natural and important response to loss, change, or a profound emotional experience. It allows…
The following is a webinar description put together by the Courageous Parents Network: Join a panel of siblings to gain insights into the fears and worries that siblings carry, the…
The following is a webinar description from the Courageous Parents Network: This event will help families understand the numerous stages to be considered while developing a special needs master plan…
