WorkGroup 4
Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved…
Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved…
Please join us for a community call facilitated by Ken Dieffenbach on Tuesday, February 22nd at 7 PM EST for AMN men. Please reach out to [email protected] if you have…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, February 23rd at 7:30 PM EST for Newborn Screening, Young Families,…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, February 24th, 2022 at 5 PM EST for pre-, post-, and non-transplanted families. Please reach…
Please join us for a community call on Monday, February 28th at 7 PM EST for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. This call will feature an…
Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, March 6th at 2PM EST for all ALD Parents and Caregivers. Parents and caregivers…
Q:Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be improved…
Please join us for a community call facilitated by Ken Dieffenbach on Tuesday, March 22nd at 7 PM EDT for AMN men. Please reach out to [email protected] if you have…
Please join us for a community call on Monday, March 28th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected]…
ALD Connect is hosting an Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting with the FDA on July 22, 2022, targeting ALD in adulthood. We need members of the ALD community to…
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, March 30th at 7:30 PM EDT for Newborn Screening, Young Families,…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, March 31st, 2022 at 5:30 PM EDT for pre-, post-, and non-transplanted families. Please reach…