ALD Community Calendar

llamada comunitaria en español

¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica…

Details

Date:
September 24
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/4ye32se

Organizer

Fundación Lautaro te Necesita y ALD Connect

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, September 25th at 7:30 PM EDT for Newborn Screening, Young Families, and…

Details

Date:
September 25
Time:
7:30 pm - 8:30 pm
Website:
https://lp.constantcontactpages.com/ev/reg/7ftqqeb

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, September 26th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out…

Details

Date:
September 26
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/mrv2tk6

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, October 24th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out…

Details

Date:
October 24
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/kjceygr

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, October 30th at 7:30 PM EDT for Newborn Screening, Young Families, and…

Details

Date:
October 30
Time:
7:30 pm - 8:30 pm
Website:
https://lp.constantcontactpages.com/ev/reg/cex96z6

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

ALD Connect Annual Meeting and Patient Learning Academy

Join us for ALD Connect's 2024 Annual Meeting and Patient Learning Academy in Washington, D.C. at the Embassy Suites by Hilton Convention Center from November 8-9, 2024. Virtual registration is…

Details

Start:
November 8 @ 8:00 am
End:
November 9 @ 5:00 pm
Website:
https://aldconnect.zohobackstage.com/2024#/

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected]. Please include the name of the event, description, and contact information. Thank you!