ALD Community Calendar

llamada comunitaria en español 12/21/2020

¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 21 de Diciembre a las 7pm ET y será facilitada por Jean Cappello. Regístrese usando este enlace: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgn3rr49418c886 **No se registre para esta llamada a menos que sea un paciente o un cuidador.   Join us…

Details

Date:
December 21, 2020
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgn3rr49418c886

Community Call: AMN Men

Please join us for a community call facilitated by Tim Maguire, Ken Dieffenbach, and Justin D’Agostino on Tuesday, December 22nd at 7 PM EST for AMN men. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3sze77c4718e **NOTE: Please do not register for this call unless you are…

Details

Date:
December 22, 2020
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3sze77c4718e

Community Call: Symptomatic Women

Please join us for a community call on Monday, December 28 at 7 PM EST for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3t0v1ca8a33a **NOTE: Please do not register for this call unless you are a patient…

Details

Date:
December 28, 2020
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3t0v1ca8a33a

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, December 30 at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3t37d4665278 **NOTE: Please do…

Details

Date:
December 30, 2020
Time:
7:30 pm - 8:30 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3t37d4665278

Community Call: Cerebral ALD

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Monday, January 5, 2021 at 8 PM EST for pre-, post-, and non-transplanted families. Please reach out to [email protected] if you have any questions. Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3t3c496e4b31 **NOTE: Please do not register for this call unless you…

Details

Date:
January 5, 2021
Time:
8:00 pm - 9:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehgl3t3c496e4b31

LLAMADA COMUNITARIA EN ESPAÑOL 1/18/2021

¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 18 de enero a las 7pm ET y será facilitada por Jean Cappello. Regístrese usando este enlace: https://events.r20.constantcontact.com/register/eventReg?oeidk=a07ehigwle2036507e1&oseq=&c=&ch= **No se registre para esta llamada a menos que sea un paciente o un cuidador.   Join us…

Details

Date:
January 18, 2021
Time:
7:00 pm - 8:00 pm
Website:
https://events.r20.constantcontact.com/register/eventReg?oeidk=a07ehigwle2036507e1&oseq=&c=&ch=

ALD Basics and Current Treatments, Questions and Answers (in Spanish)

Register here: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehi2yjb99d7f1fb1 ALD Connect - ALD Basics and Current Treatments, Q&A (in Spanish) January 20, 2021 at 1PM Eastern Dr. Patricia Musolino Assistant Professor of Neurology Massachusetts General Hospital Harvard Medical School Dr. Patricia Musolino is a Spanish-speaking ALD expert. She will present "ALD Basics and Current Treatments" in Spanish and answer questions from…

Details

Date:
January 20, 2021
Time:
1:00 pm - 2:00 pm

Community Call for Symptomatic Women

Please join us for a community call on Monday, January 25th at 7 PM ET for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. This community call will occur on the fourth Monday of every month at 7 PM ET. Please reach out to [email protected] if you have any questions. Please register using the…

Details

Date:
January 25, 2021
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehigwlds27b0138b

Community Call for AMN Men 1/26/2021

Please join us for a community call facilitated by Tim Maguire, Justin D’Agostino, and Ken Dieffenbach on Tuesday, January 26th at 7 PM ET for AMN men. This community call will occur on the fourth Tuesday of every month at 7 PM ET. Please reach out to [email protected] if you have any questions. Please register…

Details

Date:
January 26, 2021
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehigwleefbc531ff

Community Call for Newborn Screening, Young Families, and Parents of Asymptomatic Children

Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O'Sullivan Fortin on Wednesday, January 27th at 7:30 PM ET for Newborn Screening, Young Families, and Parents of Asymptomatic Children. This community call will occur on the last Wednesday of every month at 7:30 PM ET. Please reach out to…

Details

Date:
January 27, 2021
Time:
7:30 pm - 8:30 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehigwlep05b67020

Community Call for Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, February 2nd at 8 PM ET for pre-, post-, and non-transplanted families. This community call will occur on the first Tuesday of every month at 8PM ET. Please reach out to [email protected] if you have any questions. Please register using…

Details

Date:
February 2, 2021
Time:
8:00 pm - 9:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehigwlezc4cffc8c

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Llamada Comunitaria en Español

¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 15 de febrero a las 7pm ET y será facilitada por Jean Cappello. Regístrese usando este enlace: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehkwtk77cf9505a7 **No se registre para esta llamada a menos que sea un paciente o un cuidador.   Join us…

Details

Date:
February 15, 2021
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehkwtk77cf9505a7

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected]. Please include the name of the event, description, and contact information. Thank you!