Patient-Led Planning Committee (A.K.A. Workgroup 4)
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place…
Loading view.
ALD Community Calendar
Structured Community Call: Mental Health
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "The Power of Community". The call…
Community Call: Symptomatic Women
Please join us for a community call on Monday, September 23rd at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out…
llamada comunitaria en español
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica…
Community Call: AMN Men
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, September 24th at 7 PM EDT for AMN men. You can register for the…
Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, September 25th at 7:30 PM EDT for Newborn Screening, Young Families, and…
Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, September 26th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out…
Structured Community Call: Mental Health
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "The Rest of the Family". The…
Community Call: AMN Men
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, October 22nd at 7 PM EDT for AMN men. You can register using the…
Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, October 24th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out…
Community Call: Symptomatic Women
Please join us for a community call on Monday, October 28th at 7 PM EDT for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if…
Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, October 30th at 7:30 PM EDT for Newborn Screening, Young Families, and…