ULF 2021 Scientific Symposium
The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – click here. The program is here.
The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – click here. The program is here.
The United Leukodystrophy Foundation will be hosting their annual Family Conference on Friday and Saturday, June 25th and 26th. Register here.
Please join us for a community call on Monday, June 28th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected]…
Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, June 30th at 7:30 PM EDT (UTC-4 Time) for Newborn Screening,…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Wednesday, July 7th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted…
¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 10 de julio a las 5 pm EDT (hora UTC-4) y…
Please join us for a community call on Monday, July 26th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected]…
Please join us for a community call facilitated by Suzanne Flynn and Kathleen O’Sullivan Fortin on Wednesday, July 28th at 7:30 PM EDT (UTC-4 Time) for Newborn Screening, Young Families,…
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, August 3rd, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted…
Please join us for a community call facilitated by Ken Dieffenbach and Justin D’Agostino on Tuesday, August 3rd at 7 PM EDT for AMN men. Please reach out to [email protected]…
Symptomatic Women with ALD Bootcamp August 7, 2021 Register here: https://events.r20.constantcontact.com/register/eventReg?oeidk=a07ei9g462x0097a356&oseq=&c=&ch= *schedule subject to change* 11:00 AM EDT WEBINAR Overview of Symptoms in Women with ALD 12:00 PM EDT WEBINAR…
Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be…