ALD Community Calendar

The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – click here. The program is here.

The United Leukodystrophy Foundation will be hosting their annual Family Conference on Friday and Saturday, June 25th and 26th. Register here.

Symptomatic Women with ALD Bootcamp August 7, 2021 Register here: https://events.r20.constantcontact.com/register/eventReg?oeidk=a07ei9g462x0097a356&oseq=&c=&ch= *schedule subject to change* 11:00 AM EDT WEBINAR Overview of Symptoms in Women with ALD 12:00 PM EDT WEBINAR…

Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be…

X out ALD will host the 2nd annual Outrun ALD 5k on September 18th, 2021.  The 2021 Outrun ALD 5K will be virtual event once again this year. Outrun ALD…

Please join us for our virtual 2021 Annual Meeting and Patient Learning Academy on November 12 and 13, 2021! Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eij22re70cedbd91

Knockout ALD organizes and hosts the Run for ALD, Cure the Boys 5K and a one-mile-walk event in Maryland Heights, Missouri, to raise money for the ALD Research Fund at…

6th Annual ALD Standards of Care Conference 2022 January 13-14, 2022 https://www.flipcause.com/secure/cause_pdetails/MTM0OTA4

Please join X out ALD on September 17, 2022 for our Third-Annual Outrun ALD 5K. Outrun ALD will be held as a virtual event once again this year. Run, walk,…

Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place…

Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on Redefining Hope. The call will be…

Please join us for a community call on Monday, June 24th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out…