Psychological Impact of ALD Workgroup
Our goal is to provide tangible resources to families receiving this diagnosis. We will begin this effort by focusing on families receiving an ALD diagnosis at birth, but are welcoming…
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ALD Community Calendar
Bootcamp: Newborn Screening and Non-Cerebral
ALD Connect will be hosting four Bootcamps in 2021. These will be half-day virtual meetings. Each will consist of four webinars and an Ask the Experts session. Register here. 11:00…
Bootcamp: Cerebral ALD
ALD Connect will be hosting four Bootcamps in 2021. Register here: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehz9y6i6e3967965 Cerebral ALD Bootcamp (May 22, 2021) 11:00 AM Transplant 101: BMT and Gene Therapy 12:00 PM Session 2:…
Bootcamp: Men with AMN
Please join us for our ALD Connect Bootcamp for Men with AMN on Saturday, June 12, 2021 from 11:00 AM-4:00 PM. The Bootcamp will consist of four webinars and an…
June Workgroup 4 meeting
Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be…
ULF 2021 Scientific Symposium
The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – click here. The program is here.
ULF 2021 Family Conference
The United Leukodystrophy Foundation will be hosting their annual Family Conference on Friday and Saturday, June 25th and 26th. Register here.
Bootcamp: Women with ALD
Symptomatic Women with ALD Bootcamp August 7, 2021 Register here: https://events.r20.constantcontact.com/register/eventReg?oeidk=a07ei9g462x0097a356&oseq=&c=&ch= *schedule subject to change* 11:00 AM EDT WEBINAR Overview of Symptoms in Women with ALD 12:00 PM EDT WEBINAR…
August Workgroup 4 Meeting – CANCELLED!
Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be…
2021 Outrun ALD Virtual 5K
X out ALD will host the 2nd annual Outrun ALD 5k on September 18th, 2021. The 2021 Outrun ALD 5K will be virtual event once again this year. Outrun ALD…
ALD Connect 2021 Annual Meeting and Patient Learning Academy (virtual)
Please join us for our virtual 2021 Annual Meeting and Patient Learning Academy on November 12 and 13, 2021! Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eij22re70cedbd91
Knockout ALD: Run for ALD, Cure the Boys (5K/1 mile)
Knockout ALD organizes and hosts the Run for ALD, Cure the Boys 5K and a one-mile-walk event in Maryland Heights, Missouri, to raise money for the ALD Research Fund at…