The following is a description of a webinar being hosted by the United Leukodystrophy Foundation: Join us for an insightful webinar, “Family Planning as a Carrier,” hosted by Julie Cohen, … Continued

¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica … Continued

Please join us for a 90-minute Community Call co-hosted by ALD Connect (US-based) and Alex TLC (UK-based) on Sunday, February 23rd at 10am Eastern Standard Time (UTC-5 Time)/ 3pm Greenwich … Continued

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, March 13th at 5:00 PM EST for pre-, post-, and non-transplanted families. Please reach out … Continued

Join the Courageous Parents Network to explore how completing healthcare advance directives for/with your child can support your family’s goals and wishes. We will discuss the importance of discussing and … Continued

Join us for a webinar titled "Grief 101: Updates, Hard Truths, and Myths". Grief is a natural and important response to loss, change, or a profound emotional experience. It allows … Continued