llamada comunitaria en español
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica…
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ALD Community Calendar
Structured Community Call: Mental Health
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "Finding Meaning and Purpose in Life".…
Community Call: Symptomatic Women
Please join us for a community call on Monday, November 25th at 7 PM EST for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if…
Community Call: AMN Men
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, November 26th at 7 PM EST for AMN men. Please register using the following…
Community Call: AMN Men
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, December 17th at 7 PM EST for AMN men. You can register using the…
Patient-Led Planning Committee (A.K.A. Workgroup 4)
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place…
Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, December 18th at 7:30 PM EST for Newborn Screening, Young Families, and…
Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, December 19th at 5:00 PM EST for pre-, post-, and non-transplanted families. Please reach out…
Structured Community Call: Mental Health
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on "Getting Through the HoliDAZE". The call…
Community Call: Symptomatic Women
Please join us for a community call on Monday, December 23rd at 7 PM EST for symptomatic women with ALD facilitated by Kathleen O'Sullivan-Fortin. Please reach out to [email protected] if you…
llamada comunitaria en español
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica…
Patient-Led Planning Committee (A.K.A. Workgroup 4)
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place…