ALD Community Calendar

Physical Therapy Considerations for the Management of X-Linked Adrenoleukodystrophy

Join us for a webinar on December 13th at 7pm EST on physical therapy considerations for the management of X-Linked ALD. The webinar will be led by Nisha Bhandaru, a…

Details

Date:
December 13, 2022
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejiraw0p3677a7bd

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Symptomatic Women

Please join us for a community call on Monday, December 19th at 7 PM EST for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out…

Details

Date:
December 19, 2022
Time:
7:00 pm - 8:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejjqcqzcea7e3c3b

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, December 28th at 7:30 PM EST for Newborn Screening, Young Families, and…

Details

Date:
December 28, 2022
Time:
7:30 pm - 8:30 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejjqcr0pfdcf1b0f

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: ALD Parent and Caregiver Support

Please join us for a community call facilitated by Jillian Smith and Katie Mullen on Sunday, January 8th at 2PM Eastern for all ALD Parents and Caregivers. Parents and caregivers…

Details

Date:
January 8, 2023
Time:
2:00 pm - 3:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejjqcr1s0f873f66

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan-Fortin on Wednesday, January 25th at 7:30 PM EST for Newborn Screening, Young Families, and…

Details

Date:
January 25, 2023
Time:
7:30 pm - 8:30 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ejliqqfe9cd81bda

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected]. Please include the name of the event, description, and contact information. Thank you!