2022 Outrun ALD 5K
Please join X out ALD on September 17, 2022 for our Third-Annual Outrun ALD 5K. Outrun ALD will be held as a virtual event once again this year. Run, walk,…
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ALD Community Calendar
Patient-Led Planning Committee (A.K.A. Workgroup 4)
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place…
Structured Community Call: Mental Health
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on Redefining Hope. The call will be…
Community Call: Symptomatic Women
Please join us for a community call on Monday, June 24th at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out…
Community Call: AMN Men
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, June 25th at 7 PM EDT for AMN men. You can register for the…
Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children
Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, June 26th at 7:30 PM EDT for Newborn Screening, Young Families, and…
Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, June 27th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out…
llamada comunitaria en español
¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica…
Patient-Led Planning Committee
Please join ALD Connect for a discussion about ALD events, programs, projects, and initiatives at a Patient-Led Planning Committee meeting. This meeting, also known as Workgroup 4, is a place…
Structured Community Call: Mental Health
Please join us for a topic-based Community Call focused on mental health, facilitated by Jesse Torrey, LAC. This month's call will be focused on Family and Friends. The call will…
Community Call: Symptomatic Women
Please join us for a community call on Monday, July 22nd at 7 PM EDT for symptomatic women with ALD facilitated by Janis Sherwood and Kathleen O'Sullivan-Fortin. Please reach out…
Community Call: AMN Men
Please join us for a community call facilitated by Ken Dieffenbach and Tim Mathwig on Tuesday, July 23rd at 7 PM EDT for AMN men. Register here: https://lp.constantcontactpages.com/ev/reg/fmpxbhy *Please note…