ALD Community Calendar

2021 Outrun ALD Virtual 5K

X out ALD will host the 2nd annual Outrun ALD 5k on September 18th, 2021.  The 2021 Outrun ALD 5K will be virtual event once again this year. Outrun ALD…

Details

Date:
September 18, 2021

Organizer

X out ALD
Email
xoutald@gmail.com
View Organizer Website

ALD Connect 2021 Annual Meeting and Patient Learning Academy (virtual)

Please join us for our virtual 2021 Annual Meeting and Patient Learning Academy on November 12 and 13, 2021! Please register using the following link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eij22re70cedbd91

Details

Start:
November 12, 2021 @ 8:00 am
End:
November 13, 2021 @ 5:00 pm
Website:
http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eij22re70cedbd91

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O'Sullivan-Fortin on Wednesday, June 26th at 7:30 PM EDT for Newborn Screening, Young Families, and…

Details

Date:
June 26
Time:
7:30 pm - 8:30 pm
Website:
https://lp.constantcontactpages.com/ev/reg/32ewqtr

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Thursday, June 27th at 5:00 PM EDT for pre-, post-, and non-transplanted families. Please reach out…

Details

Date:
June 27
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/rzxcuep

Organizer

ALD Connect
Phone
(833) 525-3266
Email
info@aldconnect.org
View Organizer Website

llamada comunitaria en español

¡Únase a nosotros para una llamada comunitaria ALD en español! Esta convocatoria es un proyecto conjunto entre la Fundación Lautaro te Necesita y ALD Connect y será facilitada por Verónica…

Details

Date:
July 16
Time:
5:00 pm - 6:00 pm
Website:
https://lp.constantcontactpages.com/ev/reg/8u2qjy8

Organizer

Fundación Lautaro te Necesita y ALD Connect

If you would like to add an event to the ALD Community Calendar, please email your event details [email protected]. Please include the name of the event, description, and contact information. Thank you!