Bootcamp: Newborn Screening and Non-Cerebral
ALD Connect will be hosting four Bootcamps in 2021. These will be half-day virtual meetings. Each will consist of four webinars and an Ask the Experts session. Register here. 11:00…
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ALD Community Calendar
COMMUNITY CALL: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, May 4th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted…
WorkGroup 4 Meeting
Please join your fellow ALD Patients, Families, and Advocates for the Monthly WorkGroup 4 Meeting to be held THURSDAY, MAY 20th, 2021 at 7-8pm EDT (UTC-4 Time). Bring your ideas…
Bootcamp: Cerebral ALD
ALD Connect will be hosting four Bootcamps in 2021. Register here: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehz9y6i6e3967965 Cerebral ALD Bootcamp (May 22, 2021) 11:00 AM Transplant 101: BMT and Gene Therapy 12:00 PM Session 2:…
COMMUNITY CALL: SYMPTOMATIC WOMEN
Please join us for a community call on Monday, May 24th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected]…
COMMUNITY CALL: AMN MEN
Please join us for a community call facilitated by Ken Dieffenbach and Justin D’Agostino on Tuesday, May 25th at 7 PM EDT for AMN men. Please reach out to [email protected]…
COMMUNITY CALL: Newborn Screening, Young Families, Parents of Asymptomatic Children
Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, May 26th at 7:30 PM EDT (UTC-4 Time) for Newborn Screening,…
Community Call: Cerebral ALD
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, June 1st, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted…
llamada comunitaria en español
¡Únase a nosotros para una llamada comunitaria de ALD Connect en español! La llamada se llevará a cabo el 5 de junio a las 5 pm EDT (hora UTC-4) y…
Community Call: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, June 8th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted…
Bootcamp: Men with AMN
Please join us for our ALD Connect Bootcamp for Men with AMN on Saturday, June 12, 2021 from 11:00 AM-4:00 PM. The Bootcamp will consist of four webinars and an…
June Workgroup 4 meeting
Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be…