Community Call: Symptomatic Women
Please join us for a community call on Monday, March 22nd at 7 PM Eastern Time for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to…
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ALD Community Calendar
Community Call: AMN Men
Please join us for a community call facilitated by Tim Maguire, Ken Dieffenbach, and Justin D’Agostino on Tuesday, March 23rd at 7 PM EST for AMN men. Please reach out…
Support Group for Caregivers of Adult Patients
For families, partners, and other caregivers, who want a safe place to discuss the stresses, challenges, and rewards of providing care for adults with Leukodystrophies. The discussion will be led…
Psychological Impact of ALD Workgroup
Our goal is to provide tangible resources to families receiving this diagnosis. We will begin this effort by focusing on families receiving an ALD diagnosis at birth, but are welcoming…
Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children
Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, March 31st at 7:30 PM Eastern Time for Newborn Screening, Young…
Community Call: Cerebral ALD
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, April 6th, 2021 at 8 PM Eastern Time for pre-, post-, and non-transplanted families. Please…
Community Call: Symptomatic Women
Please join us for a community call on Monday, April 26th at 7 PM EDT for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. This call will include a…
Community Call: AMN Men
Please join us for a community call facilitated by Tim Maguire, Ken Dieffenbach, and Justin D’Agostino on Tuesday, April 27th at 7 PM EDT for AMN men. Please reach out…
Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children
Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, April 28th at 7:30 PM Eastern Time for Newborn Screening, Young…
Bootcamp: Newborn Screening and Non-Cerebral
ALD Connect will be hosting four Bootcamps in 2021. These will be half-day virtual meetings. Each will consist of four webinars and an Ask the Experts session. Register here. 11:00…
COMMUNITY CALL: Cerebral ALD Patients, Families, and Caregivers (Pre-, Post-, and Non-Transplanted)
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Tuesday, May 4th, 2021 at 3:30 PM Eastern Time (UTC-4 time) for pre-, post-, and non-transplanted…
WorkGroup 4 Meeting
Please join your fellow ALD Patients, Families, and Advocates for the Monthly WorkGroup 4 Meeting to be held THURSDAY, MAY 20th, 2021 at 7-8pm EDT (UTC-4 Time). Bring your ideas…