2021 ALD Family Weekend
2021 ALD Family Weekend ALD Family Weekend will be held March 19-21, 2021. Due to continuing COVID-19 restrictions and safety protocols, we will again welcome you all to a special…
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ALD Community Calendar
Support Group for Caregivers of Adult Patients
For families, partners, and other caregivers, who want a safe place to discuss the stresses, challenges, and rewards of providing care for adults with Leukodystrophies. The discussion will be led…
Psychological Impact of ALD Workgroup
Our goal is to provide tangible resources to families receiving this diagnosis. We will begin this effort by focusing on families receiving an ALD diagnosis at birth, but are welcoming…
Bootcamp: Newborn Screening and Non-Cerebral
ALD Connect will be hosting four Bootcamps in 2021. These will be half-day virtual meetings. Each will consist of four webinars and an Ask the Experts session. Register here. 11:00…
Bootcamp: Cerebral ALD
ALD Connect will be hosting four Bootcamps in 2021. Register here: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehz9y6i6e3967965 Cerebral ALD Bootcamp (May 22, 2021) 11:00 AM Transplant 101: BMT and Gene Therapy 12:00 PM Session 2:…
Bootcamp: Men with AMN
Please join us for our ALD Connect Bootcamp for Men with AMN on Saturday, June 12, 2021 from 11:00 AM-4:00 PM. The Bootcamp will consist of four webinars and an…
June Workgroup 4 meeting
Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be…
ULF 2021 Scientific Symposium
The ULF is thrilled to be offering the Scientific Symposium virtually this year on Thursday, June 24th! Registration is now open – click here. The program is here.
ULF 2021 Family Conference
The United Leukodystrophy Foundation will be hosting their annual Family Conference on Friday and Saturday, June 25th and 26th. Register here.
Bootcamp: Women with ALD
Symptomatic Women with ALD Bootcamp August 7, 2021 Register here: https://events.r20.constantcontact.com/register/eventReg?oeidk=a07ei9g462x0097a356&oseq=&c=&ch= *schedule subject to change* 11:00 AM EDT WEBINAR Overview of Symptoms in Women with ALD 12:00 PM EDT WEBINAR…
August Workgroup 4 Meeting – CANCELLED!
Q: Are you ready to make a difference and help the ALD Community with outreach and education projects? Do you have ideas for resources that are missing or could be…
2021 Outrun ALD Virtual 5K
X out ALD will host the 2nd annual Outrun ALD 5k on September 18th, 2021. The 2021 Outrun ALD 5K will be virtual event once again this year. Outrun ALD…