Community Call: AMN Men
Please join us for a community call facilitated by Tim Maguire, Ken Dieffenbach, and Justin D’Agostino on Tuesday, December 22nd at 7 PM EST for AMN men. Please reach out…
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ALD Community Calendar
Community Call: Symptomatic Women
Please join us for a community call on Monday, December 28 at 7 PM EST for symptomatic women facilitated by Kathleen O'Sullivan-Fortin and Janis Sherwood. Please reach out to [email protected]…
Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children
Please join us for a community call facilitated by Tara Meady, Suzanne Flynn, and Kathleen O’Sullivan Fortin on Wednesday, December 30 at 7:30 PM EST for Newborn Screening, Young Families,…
Community Call: Cerebral ALD
Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Monday, January 5, 2021 at 8 PM EST for pre-, post-, and non-transplanted families. Please reach…
ALD Basics and Current Treatments, Questions and Answers (in Spanish)
Register here: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehi2yjb99d7f1fb1 ALD Connect - ALD Basics and Current Treatments, Q&A (in Spanish) January 20, 2021 at 1PM Eastern Dr. Patricia Musolino Assistant Professor of Neurology Massachusetts General Hospital…
Reproductive Options for ALD Families
Please join us on Friday, March 5, 2021 at 5pm EST for a discussion about Reproductive Options for ALD families. Click here to register and receive the Zoom link: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehlpvq27b8bf0df0…
2021 ALD Family Weekend
2021 ALD Family Weekend ALD Family Weekend will be held March 19-21, 2021. Due to continuing COVID-19 restrictions and safety protocols, we will again welcome you all to a special…
Support Group for Caregivers of Adult Patients
For families, partners, and other caregivers, who want a safe place to discuss the stresses, challenges, and rewards of providing care for adults with Leukodystrophies. The discussion will be led…
Psychological Impact of ALD Workgroup
Our goal is to provide tangible resources to families receiving this diagnosis. We will begin this effort by focusing on families receiving an ALD diagnosis at birth, but are welcoming…
Bootcamp: Newborn Screening and Non-Cerebral
ALD Connect will be hosting four Bootcamps in 2021. These will be half-day virtual meetings. Each will consist of four webinars and an Ask the Experts session. Register here. 11:00…
Bootcamp: Cerebral ALD
ALD Connect will be hosting four Bootcamps in 2021. Register here: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehz9y6i6e3967965 Cerebral ALD Bootcamp (May 22, 2021) 11:00 AM Transplant 101: BMT and Gene Therapy 12:00 PM Session 2:…
Bootcamp: Men with AMN
Please join us for our ALD Connect Bootcamp for Men with AMN on Saturday, June 12, 2021 from 11:00 AM-4:00 PM. The Bootcamp will consist of four webinars and an…