Webinars

Connect With Us

Join a live, interactive webinar— a seminar accessed through the internet—that is free and can be accessed anywhere in the world. Experts from varying fields take questions and discuss a broad range of topics requested by ALD patients and their families. Explore a few selected previous webinars or search and subscribe to our YouTube channel.

The Grey Zone

Presented by Dr. Stephan Kemp and Dr. Troy Lund

ALD Connect Bootcamp for Symptomatic Women with ALD

ALD Connect Bootcamp for Men with AMN

ALD Connect Bootcamp for Cerebral ALD

ALD Connect Bootcamp for Newborn Screening and Non-Cerebral ALD

From Natural History to Clinical Trials: A Family Guide to Engaging in Research

Presented by Camille Corre

Physical Therapy Considerations for the Management of Adrenoleukodystrophy

Presented by Nisha Bhandaru

Mastering the Pediatric MRI Experience

Click here for: MRI Helpful Hints

ALD Basics and Current Treatments (in Spanish)

Presented by Dr. Patricia Musolino for ALD Connect

I just got diagnosed, now what?

Presented by Dr. Keith Van Haren for ALD Connect

Genetics & Reproductive Options

Presented by Dr. Leila Jamal for ALD Connect

Newborn Screening & Implementation

Presented by Amber Salzman and Elisa Seeger for ALD Connect

Physical Therapy for AMN Patients

Presented by Jen Keller, PT and Kathy Zackowski, PhD, OTR, MCCS for ALD Connect

Understanding Walking

Presented by Dr. Kathleen Zackowski for ALD Connect

Clinical Trials for ALD

Presented by Dr. Stephan Kemp for ALD Connect

The Invisible Family Member

Presented by Katie Weagle for ALD Connect

Reflexion Health – The Vera

Presented by Reflexion Health for ALD Connect

Women with ALD

Presented by Dr. Marc Engelen for ALD Connect

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Newborn Screening

Research

Resources

What is ALD?

Physical Therapy Considerations for the Management of Adrenoleukodystrophy

Presented by Nisha Bhandaru

Mastering the Pediatric MRI Experience

Click here for: MRI Helpful Hints

ALD Basics and Current Treatments (in Spanish)

Presented by Dr. Patricia Musolino for ALD Connect

I just got diagnosed, now what?

Presented by Dr. Keith Van Haren for ALD Connect